Guide to the Hale Zukas Papers, 1971-1998

Processed by Amber Smock, completed by Jane Bassett
The Bancroft Library.
University of California, Berkeley
Berkeley, California, 94720-6000
Phone: (510) 642-6481
Fax: (510) 642-7589
Email: bancref@library.berkeley.edu
URL: http://bancroft.berkeley.edu
© 2000
The Regents of the University of California. All rights reserved.

Guide to the Hale Zukas Papers, 1971-1998

Collection number: BANC MSS 99/150 c

The Bancroft Library



University of California, Berkeley

Berkeley, California

Contact Information:

Processed by:
Amber Smock, completed by Jane Bassett
Date Completed:
February 2000
Encoded by:
Brooke Dykman Dockter
© 2000 The Regents of the University of California. All rights reserved.

Collection Summary

Collection Title: Hale Zukas Papers,
Date (inclusive): 1971-1998
Collection Number: BANC MSS 99/150 c
Creator: Zukas, Hale
Extent: Number of containers: 2 cartons, 1 box Linear feet: 3.1 94 digital objects
Repository: The Bancroft Library.
Berkeley, California 94720-6000
Abstract: Consists of materials reflecting Zukas's leading role as a founder and activist for the disability rights and independent living movements. The collection includes his papers from the Center for Independent Living, the Disabled Students Program at U.C. Berkeley and other organizations in which he was active, as well as records documenting his advocacy work, and a very small amount of personalia
Physical Location: For current information on the location of these materials, please consult the Library's online catalog.
Languages Represented: English

Information for Researchers

Access

Collection is open for research.

Publication Rights

Copyright has not been assigned to The Bancroft Library. All requests for permission to publish or quote from manuscripts must be submitted in writing to the Head of Public Services. Permission for publication is given on behalf of The Bancroft Library as the owner of the physical items and is not intended to include or imply permission of the copyright holder, which must also be obtained by the reader.

Preferred Citation

[Identification of item], Hale Zukas Papers, BANC MSS 99/150 c, The Bancroft Library, University of California, Berkeley.

Related Collections

Related collections may be found by searching the corporate author/name "Disabled Persons' Independence Movement" in U.C. Berkeley's online catalog, GLADIS, or by using Pathfinder through the Web interface.

Indexing Terms

The following terms have been used to index the description of this collection in the library's online public access catalog.
Center for Independent Living.
University of California, Berkeley. Physically Disabled Students Program.
Rolling Quads.
People with disabilities--Legal status, laws, etc.--California.
College students with disabilities--California--Berkeley.
Discrimination against people with disabilities--Law and legislation.
People with disabilities--Services for--California.
Disability Rights and Independent Living Movement collection.

Administrative Information

Provenance

The Hale Zukas Papers were given to The Bancroft Library by Hale Zukas on August 1, 1997. Additions were made on April 21, 1998.

Funding

Funding provided by a research grant from the U.S. Department of Education, Office of Special Education and Rehabilitative Services, National Institute on Disability and Rehabilitative Research.

Biography

Hale J. Zukas was born on May 31, 1943 in Los Angeles, California. While attending UC Berkeley in the mid-1960s, he joined the Rolling Quads, a group of severely disabled students in the Cowell Residence Program who had organized themselves to advocate for the rights of students with disabilities. Zukas became one of the founders of the Physically Disabled Students Program (PDSP) on the Berkeley campus, and in 1971, he graduated with a B.A. in mathematics.
In 1972, Zukas and others founded the Center for Independent Living (CIL) in Berkeley. He was CIL's first coordinator of community affairs and remained in that position until 1982. During this time, he became an expert on benefit programs for disabled and elderly people, particularly Supplemental Security Income and In-Home Supportive Services. Zukas also became a leading advocate for the elimination of architectural and transportation barriers, especially on the Bay Area Rapid Transit system in the San Francisco Bay area.
In 1983, Zukas joined the World Institute on Disability (WID) in Oakland, California, as a public policy analyst, later becoming WID's Director of Research. Through his work at WID, Zukas has become an internationally recognized expert on such issues as personal assistance services, accessible mass transportation, the elimination of architectural barriers, and disability- related statistics. Zukas became the vice chair of the U.S. Architectural and Transportation Barriers Compliance Board in 1983, where he had been a member of the Standards, Research, and Technical Assistance Committee since 1979.
Zukas consults for several agencies and organizations, including the National Science Foundation and the Federal Highway Administration. He is the author of Attending to America: Report of the National Survey of Attendant Services Programs in the United States(1987), CIL History (1976), and various reports and articles.
Source: The ABC-CLIO Companion to The Disability Rights Movement by Fred Pelka, ABC-CLIO Inc.: Santa Barbara, California, 1997, p. 340.

Scope and Content

The Hale Zukas Papers, 1971-1998, consist of materials reflecting Zukas's leading role as a founder and activist for the disability rights and independent living movements. The collection includes his papers from the Center for Independent Living, the Disabled Students Program at U.C. Berkeley and other organizations in which he was active, records documenting his advocacy work, and a very small amount of personalia.
Zukas was a founding member of the Center for Independent Living (CIL), the world's first community-based independent living center, established in Berkeley, California in 1972. Especially noteworthy are Zukas's writings about the history of CIL and his working papers, which reflect his influence in shaping many of CIL's programs. Zukas served on CIL's Board of Directors for many years, and his papers include a run of meeting minutes and other information from 1972 to 1987. Zukas's records regarding the Disabled Students Program at U.C. Berkeley are not as extensive, but do include some of its funding proposals and reports. His work in the larger community is reflected in his papers from other organizations ranging from the Bay Area Coalition of the Disabled and Elderly to the White House Conference on Handicapped Individuals.
Some of Zukas's advocacy work is reflected in his papers, including transportation for the disabled and legislative tracking and analysis of HR-1, the Social Security Amendment of 1972.
This collection does not include many records of a personal nature, although it does contain a very small amount of personal correspondence and Zukas's resumés from early and more recently in his career.
Zukas's papers do not reflect all of his work at the Center for Independent Living, the Disabled Students Program, or some of the other organizations in which he was involved. These papers do not contain documentation of Zukas's work at the World Institute on Disability. They do, however, provide a rare and coherent glimpse into the activism that would create a revolution, and reflect the many levels on which the movement for disability rights has occurred. From the national level to the local level, from transportation barriers to social security income to student services, the organizations and issues represented in these papers record the enormous effort that it has taken in order for people with disabilities to assert their legal and human rights.

Collection Contents

 

Series 1: Center for Independent Living, 1971-1997

Physical Description: Carton 1, Carton 2, folders 1-16

Arrangement

Arranged hierarchically or chronologically, where appropriate.

Scope and Content Note

Divided into six sub-series: Background Information, Board of Directors and Committees, Working Papers, Grants, Programs, and Personnel. Background Information includes organizational history of the Center for Indpendent Living (CIL), articles of incorporation, bylaws, brochures, press clippings, and publicity. Board of Directors and Committees includes meeting minutes and information packets, while Working Papers include Zukas's writings and gathered information on specific topics regarding CIL's programs and development. Grants include funding proposals to governmental agencies and others, while drafts, reports, and policy statements are included in Programs, and Personnel includes staff meeting minutes and internal newsletters.
 

Background Information, ca. 1972-1997

carton 1, folder 1

Organizational history, [ca.1972]

carton 1, folder 2

Articles of Incorporation, 1972

carton 1, folder 3

Bylaws, 1972

carton 1, folder 3: A

BANC MSS 99/150 c Bylaws of the Center for Independent Living, 1972

carton 1, folder 3: B

BANC MSS 99/150 c Replaces Sections 1, 2 & 3 of Article III of the Bylaws, 1972

carton 1, folder 4

Brochures, 1978, n.d.

carton 1, folder 5

Press clippings, publicity, 1974-1997

 

Board of Directors and Committees, 1972-1987

carton 1, folder 6-30

Minutes, information packets, 1972-1986

carton 1, folder 6: A

BANC MSS 99/150 c First Meeting of the Potential Board of Directors, 1971

carton 1, folder 6: B

BANC MSS 99/150 c Meeting with Fred Collignon, 1971

carton 1, folder 6: C

BANC MSS 99/150 c Members of the C.I.L. Board of Directors, 1971

carton 1, folder 7: A

BANC MSS 99/150 c Board of Directors meeting, February 24, 1972, 1972

carton 1, folder 7: H

BANC MSS 99/150 c Letter to Mr. Tom Jo, Dept. of Health, Education and Welfare from Larry Biscamp, 1972

carton 1, folder 8: A

BANC MSS 99/150 c Letter to C.I.L. Board of Directors from Jim Donald, March 26,1973

carton 1, folder 8: B

BANC MSS 99/150 c Board of Directors meeting, September 24, 1973, September 24, 1973

carton 1, folder 8: C

BANC MSS 99/150 c Letter to All Board and Staff Members from Larry Biscamp, October 8, 1973

carton 1, folder 9: A

BANC MSS 99/150 c Board of Directors meeting, May 28, 1974, 1974

carton 1, folder 9: C

BANC MSS 99/150 c Board of Directors meeting, July 8, 1974, 1974

carton 1, folder 9: D

BANC MSS 99/150 c Board of Directors meeting, July 29, 1974, 1974

carton 1, folder 9: E

BANC MSS 99/150 c Fee Schedule Committee Report, 1974

carton 1, folder 9: G

BANC MSS 99/150 c Board of Directors meeting, August 26, 1974, 1974

carton 1, folder 9: H

BANC MSS 99/150 c Board of Directors meeting, September 9, 1974, 1974

carton 1, folder 9: I

BANC MSS 99/150 c The California Homemakers Association Negotiation Position, 1974

carton 1, folder 9: J

BANC MSS 99/150 c Board of Directors meeting, September 30, 1974, 1974

carton 1, folder 9: L

BANC MSS 99/150 c Fourth Quarter Report, 1974

carton 1, folder 9: M

BANC MSS 99/150 c Board of Directors meeting, October 14, 1974, 1974

carton 1, folder 9: N

BANC MSS 99/150 c Board of Directors meeting, October 28, 1974

carton 1, folder 9: O

BANC MSS 99/150 c Board of Directors meeting, November, 1974, 1974

carton 1, folder 9: P

BANC MSS 99/150 c Monthly Statistics: December 1974, 1974

carton 1, folder 9: S

BANC MSS 99/150 c Architectural Barriers Component: Second Quarter Report, 1974

carton 1, folder 9: U

BANC MSS 99/150 c Memo to Board of Directors from Eric Dibner, plus proposal, 1974

carton 1, folder 10: A

BANC MSS 99/150 c Board of Directors Election, 1975

carton 1, folder 10: B

BANC MSS 99/150 c Board of Directors Meeting, January 27, 1975, 1975

carton 1, folder 10: C

BANC MSS 99/150 c Board of Directors meeting, Febraury 24, 1975

carton 1, folder 10: D

BANC MSS 99/150 c Staff Meeting, February 24, 1975, 1975

carton 1, folder 10: E

BANC MSS 99/150 c Report on the Project to Establish a Wheelchair Repair Facility at the Center for Independent Living, 1975

carton 1, folder 10: F

BANC MSS 99/150 c Board of Directors meeting, March, 31, 1975, 1975

carton 1, folder 10: G

BANC MSS 99/150 c Board of Directors, 1975

carton 1, folder 10: H

BANC MSS 99/150 c Monthly Statistics: March 1975, 1975

carton 1, folder 10: I

BANC MSS 99/150 c Board of Directors meeting, April 28, 1975, 1975

carton 1, folder 10: J

BANC MSS 99/150 c Procedures for Board Elections, 1975

carton 1, folder 10: K

BANC MSS 99/150 c Evaluation Report Abstract, 1975

carton 1, folder 10: L

BANC MSS 99/150 c Letter to the Fire Prevention Office from Capt. Carpenter, 1975

carton 1, folder 10: M

BANC MSS 99/150 c Board of Directors meeting, May, 19, 1975, 1975

carton 1, folder 10: N

BANC MSS 99/150 c Board of Directors meeting, May 27, 1975, 1975

carton 1, folder 10: O

BANC MSS 99/150 c Staff Meeting, May 27, 1975, 1975

carton 1, folder 10: P

BANC MSS 99/150 c Montly Statistics May 1975, 1975

carton 1, folder 10: Q

BANC MSS 99/150 c Letter to Mr. Phillip Draper from Housing and Development, 1975

carton 1, folder 10: Q: 7

BANC MSS 99/150 c Floor Plan of the Cermack House, fourth floor, 1976

carton 1, folder 10: Q: 11

BANC MSS 99/150 c Floor Plan of the Wincrest Nursing Home, third floor, 1976

carton 1, folder 10: Q: 15

BANC MSS 99/150 c Floor Plan of Sac-Osage Hospital, 1974

carton 1, folder 10: R

BANC MSS 99/150 c Board of Directors meeting, July 7, 1975, 1975

carton 1, folder 10: S

BANC MSS 99/150 c Board of Directors meeting, July 28, 1975, 1975

carton 1, folder 10: T

BANC MSS 99/150 c Chair-E-Yacht Dealership Agreement with Gardner Industries, 1975

carton 1, folder 10: U

BANC MSS 99/150 c Letters to Peter Leech, 1975

carton 1, folder 10: V

BANC MSS 99/150 c Letter to Phillip Draper from the Housing and Development Department, 1975

carton 1, folder 11: A

BANC MSS 99/150 c: Board of Directors Special Membership meeting, August 11, 1975, 1975

carton 1, folder 11: B

BANC MSS 99/150 c Statement Presented at Hearing on Title XX, August 2, 1975, 1975

carton 1, folder 11: D

BANC MSS 99/150 c Board of Directors Terms, 1975

carton 1, folder 11: E

BANC MSS 99/150 c Status Report on Community Affairs Department, 1975

carton 1, folder 11: F

BANC MSS 99/150 c August 1975 Client Tally, 1975

carton 1, folder 11: G

BANC MSS 99/150 c Board of Directors meeting, September 2, 1975, 1975

carton 1, folder 11: H

BANC MSS 99/150 c Board of Directors meeting, September 29, 1975, 1975

carton 1, folder 11: I

BANC MSS 99/150 c I&E Wheelchair Design Seminar: October 8, 1975, 1975

carton 1, folder 11: J

BANC MSS 99/150 c Board of Directors Special meeting, October 13, 1975, 1975

carton 1, folder 11: K

BANC MSS 99/150 c I&E Wheelchair Design Seminar, October 17, 1975, 1975

carton 1, folder 11: L

BANC MSS 99/150 c Board of Directors meeting, October 27, 1975, 1975

carton 1, folder 11: M

BANC MSS 99/150 c Meeting with Bill Dabel, November 11, 1975, 1975

carton 1, folder 11: O

BANC MSS 99/150 c Board of Directors Special meeting, November 17, 1975, 1975

carton 1, folder 11: P

BANC MSS 99/150 c Board of Directors *Marathon Meeting*, November 24, 1975, 1975

carton 1, folder 11: Q

BANC MSS 99/150 c Board of Directors meeting, December 4, 1975, 1975

carton 1, folder 11: R

BANC MSS 99/150 c Summary for Campaign Leaflet, 1975

carton 1, folder 11: S

BANC MSS 99/150 c Application for Revenue Sharing Funds from Alameda County, 1975

carton 1, folder 12: B

BANC MSS 99/150 c Application for Project Grant, 1975

carton 1, folder 12: B: 1

BANC MSS 99/150 c p. 1, 1975

carton 1, folder 12: B: 6

BANC MSS 99/150 c p. 6, 1975

carton 1, folder 12: B: 7

BANC MSS 99/150 c p. 7, 1975

carton 1, folder 12: B: 10

BANC MSS 99/150 c p. 10, 1975

carton 1, folder 12: B: 11

BANC MSS 99/150 c p. 11, 1975

carton 1, folder 12: B: 41

BANC MSS 99/150 c Last page, 1975

carton 1, folder 12: C

BANC MSS 99/150 c Agreement between the State of California Dept. of Rehabilitation and the Center for Independent Living, Inc., 1975

carton 1, folder 12: D

BANC MSS 99/150 c Proposal Summary for Fiscal Year 1975-76, 1975

carton 1, folder 12: D: 8

BANC MSS 99/150 c Form 5, p. 2, 1975

carton 1, folder 12: E

BANC MSS 99/150 c The Impact of BART On the Physically Disabled: A Pilot Study, 1975

carton 1, folder 12: E: 8

BANC MSS 99/150 c p. 6, 1975

carton 1, folder 12: G

BANC MSS 99/150 c Proposal for Community Development and Revenue Sharing, 1975

carton 1, folder 13: A

BANC MSS 99/150 c Appeal by Center for Independent Living for Fire Marshal's Order to Vacate Fourth Floor of Milvia, 1976

carton 1, folder 13: A: 13

BANC MSS 99/150 c p. 13: Enclosure 2, 1975

carton 1, folder 13: B

BANC MSS 99/150 c Letter to Board of Directors from the Personnel Policy Committee, 1976

carton 1, folder 13: D

BANC MSS 99/150 c Letter to Mr. S. Dwight Skaggs from Phil Draper, 1976

carton 1, folder 13: E

BANC MSS 99/150 c Affirmative Action Program: Febraury 1976, 1976

carton 1, folder 13: F

BANC MSS 99/150 c Organizational Planing meeting, April 14, 1976, 1976

carton 1, folder 13: G

BANC MSS 99/150 c Amplification of the line and block organization chart, 1976

carton 1, folder 13: H

BANC MSS 99/150 c Draft: Situation Report, 1976

carton 1, folder 13: I

BANC MSS 99/150 c Discussion Paper from John Allison, 1976

carton 1, folder 14: C

BANC MSS 99/150 c Letter to CIL Board of Directors from the Development Office, October Report, 1976

carton 1, folder 14: I

BANC MSS 99/150 c Letter to Board of Directors from the Development Office, November Report, 1976

carton 1, folder 14: J

BANC MSS 99/150 c County Revenue Sharing, 1976-1977 Request Update, 1976

carton 1, folder 14: K

BANC MSS 99/150 c Letter to Friend from Michael Williams, Chairperson of CIL Board of Directors, 1976

carton 1, folder 14: O

BANC MSS 99/150 c Board of Directors, Executive Session, March 8, 1976, 1976

carton 1, folder 14: R

BANC MSS 99/150 c Letter to Mr. Donald Lorce from Edward I. Koch, 1976

carton 1, folder 14: S

BANC MSS 99/150 c Letter to Judy Heumann from Edward I. Koch, 1976

carton 1, folder 14: T

BANC MSS 99/150 c Letter to Edward I. Koch from Donald Lorence, 1976

carton 1, folder 14: U

BANC MSS 99/150 c Letter to Donald Lorce from Edward I. Koch, 1976

carton 1, folder 14: V

BANC MSS 99/150 c Letter to Norvel Smith from Edward I. Koch, 1976

carton 1, folder 14: AA

BANC MSS 99/150 c Letter to Judy Heumann from Edward I. Koch, 1976

carton 1, folder 15: A

BANC MSS 99/150 c Letter to CIL's Board of Directors from the Development Office, 1977

carton 1, folder 15: B

BANC MSS 99/150 c Executive Director's Report to the Board of Directors, 1/27/77, 1977

carton 1, folder 15: D

BANC MSS 99/150 c Board of Directors meeting, June 2, 1977, 1977

carton 1, folder 15: E

BANC MSS 99/150 c Board of Directors meeting, June 30, 1977, 1977

carton 1, folder 15: H

BANC MSS 99/150 c Letter to the Board of Directors from the Development Office, 1977

carton 1, folder 15: Q

BANC MSS 99/150 c Equipment Evaluation Project: Quarterly Report, 1977

carton 1, folder 15: R

BANC MSS 99/150 c Innovation and Expansion Grant : Contract 6616: Quarterly Progress Report, 1977

carton 1, folder 31

Membership committee, 1975-1987

 

Working Papers, 1971-1976, n.d.

carton 1, folder 32-35

Organizational development, 1971-1973, n.d.

carton 2, folder 1

Attendant care, 1973-1974, n.d.

carton 2, folder 2

Legal services, n.d.

carton 2, folder 3

Transportation, 1971-1976, n.d.

carton 2, folder 4

Wheelchairs, [1975?]

 

Grants, 1972-1976

carton 2, folder 5-7

U.S. Department of Health, Education and Welfare grant applications, 1972

carton 2, folder 8

U.S. Office of Education, 1976

carton 2, folder 9

Miscellaneous grant applications, n.d.

carton 2, folder 10

Miscellaneous grant reports, 1975-1976

 

Programs, 1975-1978

carton 2, folder 11-12

State of the Art of Independent Living Workshops, 1975-1976

carton 2, folder 13

"Peer Counseling at the Center for Independent Living: A Description of CIL's Research and Demonstration Project" (by Ken Stein), 1978

carton 2, folder 14

Policy statements, [1975?], n.d.

 

Personnel, 1975-1980, n.d.

carton 2, folder 15

Personnel, 1975-1980, n.d.

carton 2, folder 16

Staff newsletters, 1974-1976

 

Series 2: University of California, Berkeley. Disabled Students Program, 1970-1976

Physical Description: Carton 2, folders 17-22

Arrangement

Arranged hierarchically.

Scope and Content Note

Includes funding proposals, reports, meeting minutes, and miscellany.
carton 2, folder 17-19

Funding proposals, 1970-1973

carton 2, folder 20

Reports, 1971-1974

carton 2, folder 21

Coordinating Committee for the Removal of Architectural Barriers, 1976

carton 2, folder 22

Miscellany, [1970s]

 

Series 3: Other Organizations, 1970-1985

Physical Description: Carton 2, folders 23-33

Arrangement

Arranged alphabetically by organization name.

Scope and Content Note

Includes correspondence, bylaws, reports, policy statements, and press releases.
carton 2, folder 23

Bay Area Coalition of Disabled and Elderly, 1978

carton 2, folder 24

California Association of the Physically Handicapped, 1972-1978

carton 2, folder 25

California Coalition of Persons with Disabilities, Inc., 1979

carton 2, folder 26

California Dept. Of Rehabilitation, [1970s]

carton 2, folder 27

Concerned Citizens Committee for the Disabled, 1973

carton 2, folder 28-29

Disabled and Blind Action Committee, 1970-1975

carton 2, folder 30

Disabled International Support Effort, 1985

carton 2, folder 31

National Council for Homemaker-Home Health Aide Services, 1971-1972

carton 2, folder 32

United Cerebral Palsy Association, n.d.

carton 2, folder 33

White House Conference on Handicapped Individuals, 1977

 

Series 4: Advocacy Work, 1972-1989

Physical Description: Carton 2, folders 34-44, Box 1, folders 1-14

Arrangement

Arranged hierarchically.

Scope and Content Note

Divided into four sub-series by topic: In-Home Support Services (IHSS), Public Transportation, Section 504 of the Rehabilitation Act of 1973 and Supplemental Security Income (SSI). Includes writings by Zukas, organizational correspondence, agendas, and meeting minutes, reports, press releases, testimony, and flyers.
 

In-Home Support Services, 1973-1979

carton 2, folder 34

Correspondence, 1973-1979

carton 2, folder 35

California state legislation, 1976-1979

carton 2, folder 36

Federal legislation, 1974-1975

 

Public Transportation, 1974-1989

carton 2, folder 37

Papers by Zukas, 1975, n.d.

carton 2, folder 38-39

American Public Transit Association (APTA), 1977-1988

carton 2, folder 40

Americans Disabled for Accessible Public Transportation (ADAPT) activism, 1986-1989

carton 2, folder 41

Bay Area Rapid Transit (BART), 1974-1983

carton 2, folder 42

Disabled in Action in Philadelphia, 1978

carton 2, folder 43

September Alliance for Accessible Transit (SAAT), 1987

carton 2, folder 44

Press clippings, 1987-88

 

Section 504 of the Rehabilitation Act of 1973, 1977-1982

box 1, folder 1

Demonstration in San Francisco, California (HEW Sit-In), 1977

box 1, folder 2

Disability Rights Education and Defense Fund (DREDF), 1982

box 1, folder 3

U. S. Dept. of Transportation Public Hearings, 1978

 

Supplemental Security Income, 1972-1979

box 1, folder 4-13

H.R. 1 (Social Security Amendment of 1972, PL 92-603, 86 Stat. 1392), 1972-1974

box 1, folder 14

Miscellany, 1976-1979

 

Series 5: Personalia, 1971-1998

Physical Description: Box 1

Arrangement

Arranged chronologically.

Scope and Content Note

Includes a small amount of personal correspondence and resumés.
box 1, folder 15

Personal correspondence, 1971-1997

box 1, folder 16

Resumés, 1974-1998